Last Post ?

Not sure how many more of these blog pages I’ll write (never seem to have enough time to devote to them, just so busy with ‘things’) perhaps it’s just summer, although more likely it’s because I have been feeling so well. Seem to have got the thyroxine balance sorted to match my present physical state, so no more afternoon sleeps (they were quite nice actually but never had much sense of achievement out of the day).
   
    Today I met my consultant, Dr. Clark at the McMillan Centre in Dumfries: last time we met was 2 months ago. He speaks with wonderful clarity and lays out all the facts in such an understandable way. My chances of survival have increased from 30% to 50% ! The 30% that die in the first 2 years after transplant have died by now so that leaves the 30% MRD’s(Minimal Residual Disease) and the 30% GvHD’s (Graft vs Host Disease) in equal measure. So that’s good then.

    He’s decided not to go ahead with the bone marrow biopsy because there is no indication that further investigation is necessary at this stage. He warned that at some point in the future the clone lymphocytes may find a new form to get past the donor immune system; at that point  a lymphocyte transfusion from the donor would be an option but it would most likely spark off GvHD. But heck ! that’s all in the future and is speculation. The thing to do is just get on with living and take each day as it comes. I still have no immunity to infection and could get ‘blown away’ at any time but my day to day quality of life is great, as long as I can keep out of trouble.